Dwarna: a blockchain solution for dynamic consent in biobanking.

ABSTRACT: Dynamic consent aims to empower research partners and facilitate active participation in the research process. Used within the context of biobanking, it gives individuals access to information and control to determine how and where their biospecimens and data should be used. We present Dwarna-a web portal for 'dynamic consent' that acts as a hub connecting the different stakeholders of the Malta Biobank: biobank managers, researchers, research partners, and the general public. The portal stores research partners' consent in a blockchain to create an immutable audit trail of research partners' consent changes. Dwarna's structure also presents a solution to the European Union's General Data Protection Regulation's right to erasure-a right that is seemingly incompatible with the blockchain mo

SUBMITTER: Mamo N 

PROVIDER: S-EPMC7170942 | biostudies-literature | 2020 May

REPOSITORIES: biostudies-literature