RADPAC-PD: A tool to support healthcare professionals in timely identifying palliative care needs of people with Parkinson's disease.

ABSTRACT:

Background

Parkinson's disease (PD) is a progressive degenerative disease without curative treatment perspectives. Even when palliative care for people with PD seems to be beneficial, the need for palliative care is often not timely recognized.

Aim

Our aim was to develop a tool that can help healthcare professionals in timely identifying palliative care needs in people with PD.

Design

We used a mixed-methods design, including individual and focus group interviews and a three-round modified Delphi study with healthcare professionals from a multidisciplinary field.

Results

Data from the interviews suggested two distinct moments in the progressive PD trajectory: 1) an ultimate moment to initiate Advance Care Planning (ACP); and 2) the actual start of the palliativ

SUBMITTER: Lennaerts-Kats H 

PROVIDER: S-EPMC7173770 | biostudies-literature | 2020

REPOSITORIES: biostudies-literature