Development of an inventory to assess perceived barriers related to PKU treatment.

ABSTRACT:

Background

According to studies of phenylketonuria (PKU), the Brazilian population's metabolic control shows unsatisfactory indexes from childhood. Research on patients' perceived difficulties or barriers to adherence to treatment can help us to comprehend how these outcomes are associated. The present study aimed to: (1) describe the development of an inventory for identifying the most frequent and relevant perceived barriers to PKU treatment from the perspective of patients, caregivers, and healthcare professionals; (2) evaluate certain psychometric characteristics of the new measure; and, (3) explore potential predictors (sociodemographic and medical characteristics) that may contribute to increasing the number of perceived barriers and examine whether the number of barriers is

SUBMITTER: Teruya KI 

PROVIDER: S-EPMC7195505 | biostudies-literature | 2020 May

REPOSITORIES: biostudies-literature