Genetic Privacy and Data Protection: A Review of Chinese Direct-to-Consumer Genetic Test Services.

ABSTRACT:

Background

The existing literature has not examined how Chinese direct-to-consumer (DTC) genetic testing providers navigate the issues of informed consent, privacy, and data protection associated with testing services. This research aims to explore these questions by examining the relevant documents and messages published on websites of the Chinese DTC genetic test providers.

Methods

Using Baidu.com, the most popular Chinese search engine, we compiled the websites of providers who offer genetic testing services and analyzed available documents related to informed consent, the terms of services, and the privacy policy. The analyses were guided by the following inquiries as they applied to each DTC provider: the methods available for purchasing testing products; the methods pr

SUBMITTER: Du L 

PROVIDER: S-EPMC7205185 | biostudies-literature | 2020

REPOSITORIES: biostudies-literature