A Systematic Review of the Use and Quality of Qualitative Methods in Concept Elicitation for Measures with Children and Young People.

ABSTRACT:

Background

Qualitative research is recommended in concept elicitation for patient-reported outcome measures to ensure item content validity, and those developing measures are encouraged to report qualitative methods in detail. However, in measure development for children and young people, direct research can be challenging due to problems with engagement and communication.

Objectives

The aim of this systematic review was to (i) explore the qualitative and adapted data collection techniques that research teams have used with children and young people to generate items in existing measures and (ii) assess the quality of qualitative reporting.

Methods

Three electronic databases were searched with forward citation and reference list searching of key papers. Papers include

SUBMITTER: Husbands S 

PROVIDER: S-EPMC7210227 | biostudies-literature | 2020 Jun

REPOSITORIES: biostudies-literature