Addressing ethical challenges of disclosure in dementia prediction: limitations of current guidelines and suggestions to proceed.

ABSTRACT:

Background

Biomarker research is gaining increasing attention focusing on the preclinical stages of the disease. Such interest requires special attention for communication and disclosure in clinical contexts. Many countries give dementia a high health policy priority by developing national strategies and by improving guidelines addressing disclosure of a diagnosis; however, risk communication is often neglected.

Main text

This paper aims to identify the challenges of disclosure in the context of dementia prediction and to find out whether existing clinical guidelines sufficiently address the issues of disclosing a dementia diagnosis and of disclosing the risk of developing dementia in asymptomatic and MCI stage. We will examine clinical guidelines and recommendations of thre

SUBMITTER: Alpinar-Sencan Z 

PROVIDER: S-EPMC7216419 | biostudies-literature | 2020 May

REPOSITORIES: biostudies-literature