Partnering with patients in healthcare research: a scoping review of ethical issues, challenges, and recommendations for practice.

ABSTRACT:

Background

Partnering with patients in healthcare research now benefits from a strong rationale and is encouraged by funding agencies and research institutions. However, this new approach raises ethical issues for patients, researchers, research professionals and administrators. The main objective of this review is to map the literature related to the ethical issues associated with patient partnership in healthcare research, as well as the recommendations to address them. Our global aim is to help researchers, patients, research institutions and research ethics boards reflecting on and dealing with these issues.

Methods

We conducted a scoping review of the ethical issues and recommendations associated with partnering with patients in healthcare research. After our search str

SUBMITTER: Martineau JT 

PROVIDER: S-EPMC7216517 | biostudies-literature | 2020 May

REPOSITORIES: biostudies-literature