A value-based healthcare approach: Health-related quality of life and psychosocial functioning in women with Turner syndrome.

ABSTRACT:

Objective

As part of the value-based healthcare programme in our hospital, a set of patient-reported outcome measures was developed together with patients and implemented in the dedicated Turner Syndrome (TS) outpatient clinic. This study aims to investigate different aspects of health-related quality of life (HR-QoL) and psychosocial functioning in women with TS in order to establish new possible targets for therapy.

Design/participants

A comprehensive set of questionnaires (EQ-5D, PSS-10, CIS-20, Ferti-QoL, FSFI) was developed and used to capture different aspects of HR-QoL and psychosocial functioning in a large cohort of adult women with Turner syndrome. All consecutive women, ≥18 years, who visited the outpatient clinic of our tertiary centre were eligible for inclusion

SUBMITTER: van den Hoven AT 

PROVIDER: S-EPMC7216918 | biostudies-literature | 2020 May

REPOSITORIES: biostudies-literature