Implementation and dissemination of an African American popular opinion model to improve lupus awareness: an academic-community partnership.

ABSTRACT:

Objective

Lupus is a chronic, autoimmune disease that disproportionately affects African Americans. We adapted the Centers for Disease Control and Prevention's Popular Opinion Leader model to implement an intervention tailored for African American individuals that leverages an academic-community partnership and community-based social networks to disseminate culturally appropriate lupus education.

Methods

Academic rheumatologists, social scientists, and researchers in Boston, MA and Chicago, IL partnered with local lupus support groups, community organizations, and churches in neighborhoods with higher proportions of African Americans to develop curriculum and recruit community leaders with and without lupus (Popular Opinion Leaders; POLs). POLs attended four training session

SUBMITTER: Phillip CR 

PROVIDER: S-EPMC7237166 | biostudies-literature | 2019 Oct

REPOSITORIES: biostudies-literature