Paediatric chronic fatigue syndrome patients' and parents' perceptions of recovery.

ABSTRACT:

Objectives

Chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) is common in children and adolescents; however, little is known about how we should define recovery. This study aims to explore perceptions of recovery held by paediatric patients with CFS/ME and their parents.

Methods

Children with CFS/ME and their parents were recruited through a single specialist paediatric CFS/ME service. Data were collected through semistructured interviews with children and parents. The interview questions explored how participants would know if they/their child had recovered from CFS/ME. Thematic analysis was used to identify patterns within the data.

Results

Twenty-one children with CFS/ME, twenty mothers and two fathers were interviewed. Some children found it hard to defi

SUBMITTER: Harland MR 

PROVIDER: S-EPMC7245384 | biostudies-literature | 2019

REPOSITORIES: biostudies-literature