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Dataset Information

Harnessing health plan enrollee data to boost membership in patient-powered research networks.


ABSTRACT:

Background

Patient-powered research networks (PPRNs) have been employing and exploring different methods to engage patients in research activities specific to their conditions. One way to intensify patient engagement is to partner with payer stakeholders. The objective of this study was to evaluate the effectiveness of two common payer-initiated outreach methods (postal mail versus email) for inviting prospective candidates to participate in their initiatives.

Methods

This descriptive study linked members of a nationally-representative private insurance network to four disease-specific PPRN registries. Eligible members meeting diagnostic criteria who were not registered in any of the four PPRNs by 02/28/2018 were identified, and randomly assigned to either the mail or email

SUBMITTER: Chen X 

PROVIDER: S-EPMC7249317 | biostudies-literature | 2020 May

REPOSITORIES: biostudies-literature