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ABSTRACT: Background
Sri Lanka has a high prevalence of β-thalassaemia major. Clinical management is complex and long-term and includes regular blood transfusion and iron chelation therapy. The economic burden of β-thalassaemia for the Sri Lankan healthcare system and households is currently unknown.Methods
A prevalence-based, cost-of-illness study was conducted on the Thalassaemia Unit, Department of Paediatrics, Kandy Teaching Hospital, Sri Lanka. Data were collected from clinical records, consultations with the head of the blood bank and a consultant paediatrician directly involved with the care of patients, alongside structured interviews with families to gather data on the personal costs incurred such as those for travel.Results
Thirty-four children aged 2-17 years with
SUBMITTER: Reed-Embleton H
PROVIDER: S-EPMC7251920 | biostudies-literature | 2020 May
REPOSITORIES: biostudies-literature