Perceptions of US Adolescents and Adults With Sickle Cell Disease on Their Quality of Care.

ABSTRACT:

Importance

Sickle cell disease (SCD) is the most common inherited red blood cell disorder in the United States, and previous studies have shown that individuals with SCD are affected by multiple health disparities, including stigmatization, inequities in funding, and worse health outcomes, which may preclude their ability to access quality health care. This needs assessment was performed as part of the Sickle Cell Disease Implementation Consortium (SCDIC) to assess barriers to care that may be faced by individuals with SCD.

Objective

To assess the SCD-related medical care experience of adolescents and adults with SCD.

Design, setting, and participants

This one-time survey study evaluated pain interference, quality of health care, and self-efficacy of 440 adults and ad

SUBMITTER: Kanter J 

PROVIDER: S-EPMC7260622 | biostudies-literature | 2020 May

REPOSITORIES: biostudies-literature