Formative research to design a culturally-appropriate cancer clinical trial education program to increase participation of African American and Latino communities.

ABSTRACT:

Background

Addressing knowledge deficiencies about cancer clinical trials and biospecimen donation can potentially improve participation among racial and ethnic minorities. This paper describes the formative research process used to design a culturally-appropriate cancer clinical trials education program for African American and Latino communities. We characterized community member feedback and its integration into the program.

Methods

We incorporated three engagement approaches into the formative research process to iteratively develop the program: including community-based organization (CBO) leaders as research team members, conducting focus groups and cognitive interviews with community members as reviewers/consultants, and interacting with two community advisory groups.

SUBMITTER: Cunningham-Erves J 

PROVIDER: S-EPMC7268329 | biostudies-literature | 2020 Jun

REPOSITORIES: biostudies-literature