Public preferences regarding data linkage for research: a discrete choice experiment comparing Scotland and Sweden.

ABSTRACT:

Background

There are increasing examples of linking data on healthcare resource use and patient outcomes from different sectors of health and social care systems. Linked data are generally anonymised, meaning in most jurisdictions there are no legal restrictions to their use in research conducted by public or private organisations. Secondary use of anonymised linked data is contentious in some jurisdictions but other jurisdictions are known for their use of linked data. The publics' perceptions of the acceptability of using linked data is likely to depend on a number of factors. This study aimed to quantify the preferences of the public to understand the factors that affected views about types of linked data and its use in two jurisdictions.

Method

An online discrete choice

SUBMITTER: Tully MP 

PROVIDER: S-EPMC7298855 | biostudies-literature | 2020 Jun

REPOSITORIES: biostudies-literature