Data driven decision making to characterize clinical personas of parents of children with cystic fibrosis: a mixed methods study.

ABSTRACT:

Background

Beginning at a young age, children with cystic fibrosis (CF) embark on demanding care regimens that pose challenges to parents. We examined the extent to which clinical, demographic and psychosocial features inform patterns of adherence to pulmonary therapies and how these patterns can be used to develop clinical personas, defined as aspects of adherence barriers that are presented by parents and/or perceived by clinicians, in order to enhance personalized CF care delivery.

Methods

We undertook an explanatory sequential mixed-methods study consisting of i) multivariate clustering to create clusters corresponding to parental adherence patterns (quantitative phase); ii) parental participant interviews to create clinical personas interpreted from clustering (qualitat

SUBMITTER: Szczesniak RD 

PROVIDER: S-EPMC7301999 | biostudies-literature | 2020 Jun

REPOSITORIES: biostudies-literature