Dataset Information
Family caregiving in the community up to 8-years after onset of dementia.
Ontology highlight
ABSTRACT: Background
Persons with Alzheimer's disease and related dementias (ADRD) receive care from family/friends, but how care changes from the onset of dementia remains less understood.Methods
We used the Health and Retirement Study (2002-2012) to identify community-dwelling individuals predicted to have incident ADRD. We investigated the amount of caregiving received for activities of daily living in the 8-years after disease onset.Results
At incidence (n = 1158), persons with ADRD received 151 h (SD = 231) of caregiving a month, 25 (SD = 26) caregiving days a month and had 1.3 (SD = 1.4) caregivers a month. By 8-years post incidence, 187 (16%) individuals transitioned to a nursing home and 662 (57%) died in the community. Community-dwelling persons with ADRD at 8-years post incidence (n = 30) received 283 h (SD = 257) of caregiving, 38 (SD = 24) caregiving days, and had 2.2 (SD = 1.3) caregivers.Conclusions
Community-dwelling persons with ADRD receive a substantial amount of caregiving over the first 8-years after disease onset.
SUBMITTER: Jutkowitz E
PROVIDER: S-EPMC7304188 | biostudies-literature | 2020 Jun
REPOSITORIES: biostudies-literature
Publications
Family caregiving in the community up to 8-years after onset of dementia.
BMC geriatrics 20200619 1
<h4>Background</h4>Persons with Alzheimer's disease and related dementias (ADRD) receive care from family/friends, but how care changes from the onset of dementia remains less understood.<h4>Methods</h4>We used the Health and Retirement Study (2002-2012) to identify community-dwelling individuals predicted to have incident ADRD. We investigated the amount of caregiving received for activities of daily living in the 8-years after disease onset.<h4>Results</h4>At incidence (n = 1158), persons with ...[more]