Patient involvement in preparing health research peer-reviewed publications or results summaries: a systematic review and evidence-based recommendations.

ABSTRACT:

Background

There are increasing calls for patient involvement in sharing health research results, but no evidence-based recommendations to guide such involvement. Our objectives were to: (1) conduct a systematic review of the evidence on patient involvement in results sharing, (2) propose evidence-based recommendations to help maximize benefits and minimize risks of such involvement and (3) conduct this project with patient authors.

Methods

To avoid research waste, we verified that no systematic reviews were registered or published on this topic. We co-created, with patients, a PRISMA-P-compliant protocol. We included peer-reviewed publications reporting the effects of patient involvement in preparing peer-reviewed publications or results summaries from health research studi

SUBMITTER: Arnstein L 

PROVIDER: S-EPMC7313171 | biostudies-literature | 2020

REPOSITORIES: biostudies-literature