Unmet needs and recommendations to improve meningioma care through patient, partner, and health care provider input: a mixed-method study.

ABSTRACT:

Background

It has been suggested that lack of ongoing registration of patient-centered outcomes has resulted in existing care trajectories that have not been optimized for sequelae experienced by meningioma patients. This study aimed to evaluate the structure of current meningioma care and identify issues and potential high-impact improvement initiatives.

Methods

Using the grounded theory approach, a thematic framework was constructed based on the Dutch Comprehensive Cancer Organisation survey about issues in meningioma care trajectories. This framework was used during 3 semistructured interviews and 2 focus groups with patient-partner dyads (n = 16 participants), and 2 focus groups with health care providers (n = 11 participants) to assess issues in current meningioma care

SUBMITTER: Zamanipoor Najafabadi AH 

PROVIDER: S-EPMC7318860 | biostudies-literature | 2020 Mar

REPOSITORIES: biostudies-literature