Parallel but connected: Nuances of conducting behavioral and social science research alongside ethically challenging HIV remission trials.

ABSTRACT: Collaborations between clinical investigators and behavioral and social science researchers (BSSR) produce many benefits, but also may generate challenges and complexities. Ongoing relationships between teams may affect the research carried out by the BSSR team and the way they interpret their findings. Here we describe our experiences conducting the HIV Remission ('Cure') Trials Decision-Making Study (DMS), in Thailand; these trials include potentially risky interventions and interruption of standard antiretroviral treatment, with little personal benefit. The DMS is a longitudinal study of the experiences of individuals recruited to such early-phase trials, and conducted alongside these trials. It originated in clinical investigators' concerns about the ability of those recruited to make

SUBMITTER: Henderson GE 

PROVIDER: S-EPMC7322675 | biostudies-literature | 2020 Sep

REPOSITORIES: biostudies-literature