Realist evaluation of public engagement and involvement in data-intensive health research.

ABSTRACT:

Background

High quality public engagement and involvement (PEI) in data-intensive health research is seen as one way of ensuring that social legitimacy, i.e. a social license, is conferred through public acceptance of the need for research use of their data. This is a complex research area, and portfolios of involvement have been suggested, but not yet evaluated, to support the role of public contributors. The study aim was to evaluate if and how membership of a data-intensive research public forum can act as a mechanism for enhancing members' personal development. Our objective was to understand the circumstances and mechanisms that help to explain how, why and for whom involvement with a public forum enhanced those members' personal development.

Method

Qualitative data wer

SUBMITTER: Hobbs G 

PROVIDER: S-EPMC7325137 | biostudies-literature | 2020

REPOSITORIES: biostudies-literature