Implementation considerations for offering personal genomic risk information to the public: a qualitative study.

ABSTRACT:

Background

Genomic risk information, based on common genomic susceptibility variants associated with risk of complex diseases such as cancer, may be incorporated into personalised prevention and screening strategies. We aimed to engage with members of the public, who are important stakeholders in this process, to further inform program development and other implementation outcomes such as acceptability and appropriateness.

Methods

Semi-structured interviews were undertaken with 30 participants (aged 24-69 years, 50% female) recruited from a pilot trial in which they received personalised genomic risk information for melanoma. We explored participants' views and attitudes towards offering general personal genomic risk information to the broader population. The data were analy

SUBMITTER: Smit AK 

PROVIDER: S-EPMC7325160 | biostudies-literature | 2020 Jun

REPOSITORIES: biostudies-literature