Flare-IBD: development and validation of a questionnaire based on patients' messages on an internet forum for early detection of flare in inflammatory bowel disease: study protocol.

ABSTRACT:

Introduction

Crohn's disease and ulcerative colitis, the two major forms of inflammatory bowel disease (IBD), are chronic disabling conditions characterised by flares followed by periods of remission. However, patients with IBD are seen every 3-6 months in the outpatient clinic, and the occurrence of a flare between two outpatient visits is not captured. To our knowledge, there is no validated patient-reported outcome (PRO) tool to measure the phenomenon of flare in IBD. This study aimed to use an innovative methodology to collect messages posted by patients in an internet forum for developing and validating a PRO measuring flare in IBD.

Methods and analysis

The design involves (1) computer engineering sciences for scraping extraction of messages posted in an internet forum

SUBMITTER: Ricci L 

PROVIDER: S-EPMC7332197 | biostudies-literature | 2020 Jul

REPOSITORIES: biostudies-literature