Interdisciplinary palliative care for people with advanced Parkinson's disease: a view from the home.

ABSTRACT:

Background

Advanced Parkinson's disease (PD) is a multidimensional neurodegenerative condition with motor and non-motor symptoms contributing to increasing disability and decreasing quality of life. As the disease progresses, patients may become homebound and estranged from neurological care, with dire consequences. We describe the increasing epidemiologic burden of and individual risks faced by patients with palliative-stage PD and their caregivers.

Methods

With the aim of mitigating these risks, we designed and iterated two models of interdisciplinary home visits to maintain continuity of care and illuminate the unmet needs and barriers to care faced by this population. We describe both models in detail, with data on feasibility and patient-centered outcomes achieved in th

SUBMITTER: Fleisher JE 

PROVIDER: S-EPMC7341729 | biostudies-literature | 2020 Feb

REPOSITORIES: biostudies-literature