Patient and Caregiver Perspectives on Terms Used to Describe Kidney Health.

ABSTRACT:

Background and objectives

The language used to communicate important aspects of kidney health is inconsistent and may be conceptualized differently by patients and health professionals. These problems may impair the quality of communication, care, and patient outcomes. We aimed to describe the perspectives of patients on terms used to describe kidney health.

Design, setting, participants, & measurements

Patients with CKD (n=54) and caregivers (n=13) from the United States, United Kingdom, and Australia participated in ten focus groups to discuss terms for kidney health (including kidney, renal, CKD, ESKD, kidney failure, and descriptors for kidney function). We analyzed the data using thematic analysis.

Results

We identified four themes: provoking and

SUBMITTER: Tong A 

PROVIDER: S-EPMC7341768 | biostudies-literature | 2020 Jul

REPOSITORIES: biostudies-literature