Giving patients a voice: a participatory evaluation of patient engagement in Newfoundland and Labrador Health Research.

ABSTRACT:

Background

Efforts to engage patients as partners in health research have grown and thereby the need for feedback and evaluation. In this pilot evaluation study, we aimed to 1) evaluate patient engagement in health research projects in Newfoundland and Labrador, Canada, and 2) learn more about how to best monitor and evaluate patient engagement. This paper presents the results of our participatory evaluation study and the lessons learned. The evaluation of the projects was driven by questions patients wanted answered.

Methods

We conducted a formative evaluation of patient engagement in health research projects. Projects spanned a variety of topics, target groups, research designs and methods of patient engagement. Participants included principal investigators (n = 6)

SUBMITTER: Vat LE 

PROVIDER: S-EPMC7350650 | biostudies-literature | 2020

REPOSITORIES: biostudies-literature