Implementation of data access and use procedures in clinical data warehouses. A systematic review of literature and publicly available policies.

ABSTRACT:

Background

The promises of improved health care and health research through data-intensive applications rely on a growing amount of health data. At the core of large-scale data integration efforts, clinical data warehouses (CDW) are also responsible for data governance, managing data access and (re)use. As the complexity of the data flow increases, greater transparency and standardization of criteria and procedures are required in order to maintain objective oversight and control. Therefore, the development of practice oriented and evidence-based policies is crucial. This study assessed the spectrum of data access and use criteria and procedures in clinical data warehouses governance internationally.

Methods

We performed a systematic review of (a) the published scientific li

SUBMITTER: Pavlenko E 

PROVIDER: S-EPMC7353743 | biostudies-literature | 2020 Jul

REPOSITORIES: biostudies-literature