The role of patient and public involvement leads in facilitating feedback: "invisible work".

ABSTRACT:

Background

Health research in the UK requires patients, those with lived experience and members of the public to be involved in designing and shaping research: many of them have reported that their comments and suggestions are not always acknowledged, and they do not know if their input has been used or is useful. The benefits of feedback from researchers not only create motivation for further involvement but aids learning and development, as well as recording impact. The aims of this study were to improve the feedback experience of Patient and Public Involvement (PPI) contributors. Co-produced feedback processes were designed and implemented in order to change feedback from researchers to PPI contributors in six PPI groups in England.

Methods

An explanatory mixed methods se

SUBMITTER: Mathie E 

PROVIDER: S-EPMC7353750 | biostudies-literature | 2020

REPOSITORIES: biostudies-literature