Report of a Delphi exercise to inform the design of a research programme on screening for thoracic aortic disease.

ABSTRACT:

Objectives

To inform the design of a clinical trial of a targeted screening programme for relatives of individuals affected by thoracic aortic disease, we performed a consensus exercise as to the acceptability of screening, the optimal sequence and choice of tests, long-term patient management, and choice of trial design.

Methods

Working with the Aortic Dissection Awareness UK & Ireland patient association, we performed a Delphi exercise with clinical experts, patients, and carers, consisting of three rounds of consultation followed by a final multi-stakeholder face-to-face workshop.

Results

Thirty-five experts and 84 members of the public took part in the surveys, with 164 patients and clinicians attending the final workshop. There was substantial agreement on the ne

SUBMITTER: Abbasciano RG 

PROVIDER: S-EPMC7367380 | biostudies-literature | 2020 Jul

REPOSITORIES: biostudies-literature