Assessment of patient-centered outcomes (PROs) in inflammatory bowel disease (IBD): a multicenter survey preceding a cross-disciplinary (functional) consensus.

ABSTRACT:

Background

With a shift in the healthcare paradigm towards a more patient-centered approach, data on inflammatory bowel disease (IBD) needs to be further explored. This study aimed to determine patient perspectives on the effect of IBD and features of patients with lower satisfaction level and compare patient and physician perception of IBD-related Quality of Care (QoC).

Methods

A previously developed pre-standardised set of questions regarding patient-centered outcome (PRO) measures for IBD, comprising 36 items, was administered in five centers, and a concomitant questionnaire for specialised physicians was adapted and administered.

Results

Overall, 1005 patients with IBD met the inclusion criteria. Sixty-five questionnaires were administered to specialised physician

SUBMITTER: Yan X 

PROVIDER: S-EPMC7372780 | biostudies-literature | 2020 Jul

REPOSITORIES: biostudies-literature