Engaging indigenous patient partners in patient-oriented research: lessons from a one-year initiative.

ABSTRACT:

Background

Patient-oriented research (POR) is a specific application of participatory research that promotes active patient engagement in health research. There is a growing concern that people involved in POR do not reflect the diversity of the population such research aims to serve, but are rather those more 'easily' engaged with institutions, organizations and society. Indigenous peoples are among such groups generally underrepresented in POR. The "Indigenous patient partners platform project" was a small-scale initiative aimed to address the issue of the underrepresentation of Indigenous people in patient-oriented research by recruiting, orienting and supporting Indigenous patient partners in Québec (Canada). This article reports on the findings of an evaluation conducted at th

SUBMITTER: Tremblay MC 

PROVIDER: S-EPMC7376932 | biostudies-literature | 2020

REPOSITORIES: biostudies-literature