Treatment decision-making in diffuse cutaneous systemic sclerosis: a patient's perspective.

ABSTRACT:

Objectives

To examine the treatment decision-making process of patients with dcSSc in the context of haematopoietic stem cell transplantation (HSCT).

Methods

A qualitative semi-structured interview study was done in patients before or after HSCT, or patients who chose another treatment than HSCT. Thematic analysis was used. Shared decision-making (SDM) was assessed with the 9-item Shared Decision Making Questionnaire (SDM-Q-9).

Results

Twenty-five patients [16 male/nine female, median age 47 (range 27-68) years] were interviewed: five pre-HSCT, 16 post-HSCT and four following other treatment. Whereas the SDM-Q-9 showed the decision-making process was perceived as shared [median score 81/100 (range 49-100)], we learned from the interviews that the decision was predomin

SUBMITTER: Spierings J 

PROVIDER: S-EPMC7382600 | biostudies-literature | 2020 Aug

REPOSITORIES: biostudies-literature