Development and preliminary validation of the Adolescent Psoriasis Quality of Life instrument: a disease-specific measure of quality of life in adolescents with psoriasis.

ABSTRACT:

Background

No age-appropriate and disease-specific instrument currently exists to measure health-related quality of life in adolescents with psoriasis (patients aged 12-17 years).

Objectives

To develop and provide preliminary validation of the Adolescent Psoriasis Quality of Life instrument.

Methods

Qualitative interviews with adolescents with psoriasis, parents of adolescents with psoriasis, and healthcare professionals informed the development of an initial item pool for the instrument, which was subsequently refined through cognitive interviews. Finally, data from an independent sample of adolescents with psoriasis (n = 50) were used for item reduction, scale construction and initial validation, using a combination of techniques from classical test theory and Rasch

SUBMITTER: Randa H 

PROVIDER: S-EPMC7383696 | biostudies-literature | 2020 Jul

REPOSITORIES: biostudies-literature