Caring for children with neurodevelopmental disability: Experiences from caretakers and health workers in rural eastern Uganda.

ABSTRACT:

Background

Long term outcomes of children with neurodevelopmental disability are influenced by the condition itself, available health services and caretakers' coping ability to nurture the children which may be related to their beliefs and experiences. Most children with neurodevelopmental disabilities live in resource constrained settings. To inform design of contextually appropriate interventions, this study explored health workers' and caretakers' experiences in caring for infants with neurodevelopmental disability in rural eastern Uganda.

Methods

A qualitative case study was carried out in December 2017 and involved in-depth interviews with 14 caretakers of infants with severe neurodevelopmental disability, and five health workers in Iganga/Mayuge Demographic Surveillanc

SUBMITTER: Namazzi G 

PROVIDER: S-EPMC7384645 | biostudies-literature | 2020

REPOSITORIES: biostudies-literature