Capturing the complexity of healthcare for people with Down syndrome in quality indicators - a Delphi study involving healthcare professionals and patient organisations.

ABSTRACT:

Background

Insight into quality of healthcare for people with Down Syndrome (DS) is limited. Quality indicators (QIs) can provide this insight. This study aims to find consensus among participants regarding QIs for healthcare for people with DS.

Methods

We conducted a four-round Delphi study, in which 33 healthcare professionals involved in healthcare for people with DS and two patient organisations' representatives in the Netherlands participated. Median and 75-percentiles were used to determine consensus among the answers on 5-point Likert-scales. In each round, participants received an overview of participants' answers from the previous round.

Results

Participants agreed (consensus was achieved) that a QI-set should provide insight into available healthcare, enable

SUBMITTER: van den Driessen Mareeuw FA 

PROVIDER: S-EPMC7385945 | biostudies-literature | 2020 Jul

REPOSITORIES: biostudies-literature