Characteristics, Symptom Severity, and Experiences of Patients Reporting Chronic Kidney Disease in the PatientsLikeMe Online Health Community: Retrospective and Qualitative Study.

ABSTRACT:

Background

Chronic kidney disease (CKD) is a major global health burden, and is associated with increased adverse outcomes, poor quality of life, and substantial health care costs. While there is an increasing need to build patient-centered pathways for improving CKD management in clinical care, data in this field are scarce.

Objective

The aim of this study was to understand patient-reported experiences, symptoms, outcomes, and treatment journeys among patients with CKD through a retrospective and qualitative approach based on data available through PatientsLikeMe (PLM), an online community where patients can connect and share experiences.

Methods

Adult members (aged ≥18 years) with self-reported CKD within 30 days of enrollment, who were not on dialysis, and register

SUBMITTER: James G 

PROVIDER: S-EPMC7391670 | biostudies-literature | 2020 Jul

REPOSITORIES: biostudies-literature