Longitudinal follow-up after telephone disclosure in the randomized COGENT study.

ABSTRACT:

Purpose

To better understand the longitudinal risks and benefits of telephone disclosure of genetic test results in the era of multigene panel testing.

Methods

Adults who were proceeding with germline cancer genetic testing were randomized to telephone disclosure (TD) with a genetic counselor or in-person disclosure (IPD) (i.e., usual care) of test results. All participants who received TD were recommended to return to meet with a physician to discuss medical management recommendations.

Results

Four hundred seventy-three participants were randomized to TD and 497 to IPD. There were no differences between arms for any cognitive, affective, or behavioral outcomes at 6 and 12 months. Only 50% of participants in the TD arm returned for the medical follow-up appointment. R

SUBMITTER: Kilbride MK 

PROVIDER: S-EPMC7396300 | biostudies-literature | 2020 Aug

REPOSITORIES: biostudies-literature