Hospice Staff Perspectives on Caring for People with Dementia: A Multisite, Multistakeholder Study.

ABSTRACT: Background: In the United States, 45% of people enrolled in hospice have dementia. We know little about how hospice professionals facilitate preference-aligned end-of-life care for people with dementia (PWD) and their families. Objective: To examine hospice stakeholders' perspectives on caring for PWD and their families. Design: Multisite qualitative study using semi-structured interviews with interdisciplinary hospice clinicians, leaders, and administrators. The interdisciplinary team used the constant comparative method to identify, code, and characterize relevant themes. Setting/participants: Four geographically distinct nonprofit U.S. hospice organizations. Fifty-one hospice employees: 61% clinical staff, 25% executive leaders, an

SUBMITTER: Harrison KL 

PROVIDER: S-EPMC7404831 | biostudies-literature | 2020 Aug

REPOSITORIES: biostudies-literature