An Innovative Online Qualitative Study to Explore the Symptom Experience of Patients with Primary Sjogren's Syndrome.

ABSTRACT:

Introduction

Primary Sjögren's syndrome (pSS) is a complex, heterogenous autoimmune disease; no immunomodulatory drug has demonstrated efficacy, and no current treatments target the underlying cause. This study aimed to explore the disease and treatment experiences of patients with pSS.

Methods

This qualitative study (208399) comprised moderated online forum discussions and online one-to-one questions conducted in the USA over a 2-week period. Participants were self-reported patients with pSS; physician confirmation of diagnosis was sought. Participants described disease and symptom severity and satisfaction with current pSS treatments. Qualitative data analysis was performed using inductive coding analysis via open coding.

Results

Fifty-two participants entered the s

SUBMITTER: Gairy K 

PROVIDER: S-EPMC7410917 | biostudies-literature | 2020 Sep

REPOSITORIES: biostudies-literature