Towards advance care planning in pediatrics: a qualitative study on envisioning the future as parents of a seriously ill child.

ABSTRACT: Advance care planning enables parents to discuss goals and preferences for future care and treatment of their seriously ill child. Although clinicians report parental factors as common barriers for advance care planning, parental views on reflecting on their child's future have had limited exploration. A clear understanding of their perspectives might help clinicians to implement advance care planning tailored to parental needs. This interpretive qualitative study using thematic analysis aims to identify how parents envision the future when caring for their seriously ill child. Single interviews and two focus groups were attended by 20 parents of 17 seriously ill children. Parents reported to focus on the near future of their child. However, their actions and deeper thoughts showed perspec

SUBMITTER: Fahner JC 

PROVIDER: S-EPMC7413894 | biostudies-literature | 2020 Sep

REPOSITORIES: biostudies-literature