Public trust and global biobank networks.

ABSTRACT:

Background

Biobanks provide an important foundation for genomic and personalised medicine. In order to enhance their scientific power and scope, they are increasingly becoming part of national or international networks. Public trust is essential in fostering public engagement, encouraging donation to, and facilitating public funding for biobanks. Globalisation and networking of biobanking may challenge this trust.

Methods

We report the results of an Australian study examining public attitudes to the networking and globalisation of biobanks. The study used quantitative and qualitative methods in conjunction with bioethical analysis in order to determine factors that may contribute to, and threaten, trust.

Results

Our results indicate a generally high level of trust in

SUBMITTER: Dive L 

PROVIDER: S-EPMC7429755 | biostudies-literature | 2020 Aug

REPOSITORIES: biostudies-literature