How patients experience endocrine therapy for breast cancer: an online survey of side effects, adherence, and medical team support.

ABSTRACT:

Purpose

Many patients with hormone receptor-positive (HR+) breast cancer do not adhere to endocrine therapy (ET), and treatment-related side effects are often discussed by participants in online breast cancer forums. Our aim was to survey this unique group of patients about their ET-related experiences.

Methods

We partnered with patients active in breast cancer social media communities to develop a survey assessing ET-related side effects and medical team communication. Patients with a history of HR+ breast cancer who had received a recommendation to take ET were eligible to participate in the anonymous, online survey.

Results

Respondents included 2353 women and 54 men. Aromatase inhibitors were the most commonly used medication. Side effects were reported by 91.2%, w

SUBMITTER: Berkowitz MJ 

PROVIDER: S-EPMC7430212 | biostudies-literature | 2021 Feb

REPOSITORIES: biostudies-literature