Understanding the Health Literacy in Patients With Thrombotic Thrombocytopenic Purpura.

ABSTRACT: Following an acute thrombotic thrombocytopenic purpura (TTP) episode, patients are at risk for relapse, and a careful long-term follow-up is needed. Adherence to the follow-up by patients implies a good understanding of the disease. However, TTP literacy in patients is currently unknown. To explore the TTP literacy in patients and identify factors associated with poor disease understanding, a questionnaire was developed focusing on patient's characteristics, knowledge about TTP and patients' actions in an emergency. The questionnaire was presented to 120 TTP patients in remission from the French National Registry for Thrombotic Microangiopathies. TTP literacy was low in 24%, intermediate in 43% and high in 33% of the patients. Low TTP literacy was associated with older age and low educatio

SUBMITTER: Pereira LCV 

PROVIDER: S-EPMC7430230 | biostudies-literature | 2020 Aug

REPOSITORIES: biostudies-literature