Pilot implementation of an electronic patient-reported outcome measure for planning and monitoring participation-focused care in early intervention.

ABSTRACT:

Background

Family-centered care is a valued approach to improving child and family outcomes in early intervention (EI), yet there is need to implement interventions that support information exchange for shared decision-making when planning and monitoring EI care. This study aims at estimating the feasibility, acceptability, and value of implementing the Young Children's Participation and Environment Measure (YC-PEM), a valid electronic patient-reported outcome (e-PRO) that is designed to support family engagement when planning care and monitoring outcomes of care.

Methods

Data were gathered from caregivers (N = 139) that were enrolled in a Phase 1 trial of the YC-PEM e-PRO as implemented within 1 month of their child's next EI evaluation of progress. YC-PEM e-PRO feasibility

SUBMITTER: Albrecht EC 

PROVIDER: S-EPMC7446047 | biostudies-literature | 2020 Aug

REPOSITORIES: biostudies-literature