Goals-of-care decision aid for critically ill patients with TBI: Development and feasibility testing.

ABSTRACT:

Objective

To develop and demonstrate early feasibility of a goals-of-care decision aid for surrogates of patients who are critically ill with traumatic brain injury (ciTBI) that meets accepted international decision aid guidelines.

Methods

We developed the decision aid in 4 stages: (1) qualitative study of goals-of-care communication and decision needs of 36 stakeholders of ciTBI (surrogates and physicians), which informed (2) development of paper-based decision aid with iterative revisions after feedback from 52 stakeholders; (3) acceptability and usability testing in 18 neurologic intensive care unit (neuroICU) family members recruited from 2 neuroICU waiting rooms using validated scales; and (4) open-label, randomized controlled feasibility trial in surrogates of ciTBI. W

SUBMITTER: Muehlschlegel S 

PROVIDER: S-EPMC7455326 | biostudies-literature | 2020 Jul

REPOSITORIES: biostudies-literature