Understanding the Lexicon of Fatigue in Parkinson's Disease.

ABSTRACT:

Background

Fatigue in Parkinson's disease (PD) is multifaceted and associated with reduced quality of life. In turn, the language used by people with PD to describe fatigue is variable and poorly understood. We sought to elucidate the lexicon of fatigue using a qualitative grounded theory approach.

Objective

The objective of this study was to understand how patients with PD describe fatigue.

Methods

A pre-study phase of online journaling (Phase 1) provided information regarding topics of importance to patients. Following this, two independent samples of fatigued subjects were studied. Individuals with PD participated in a telephone interview (Phase 2); interview transcripts were analyzed to develop a detailed codebook. To ensure trustworthiness of the findings, an onl

SUBMITTER: Mantri S 

PROVIDER: S-EPMC7458521 | biostudies-literature | 2020

REPOSITORIES: biostudies-literature