The Dutch LATER physical outcomes set for self-reported data in survivors of childhood cancer.

ABSTRACT:

Purposes

Studies investigating self-reported long-term morbidity in childhood cancer survivors (CCS) are using heterogeneous outcome definitions, which compromises comparability and include (un)treated asymptomatic and symptomatic outcomes. We generated a Dutch LATER core set of clinically relevant physical outcomes, based on self-reported data. Clinically relevant outcomes were defined as outcomes associated with clinical symptoms or requiring medical treatment.

Methods

First, we generated a draft outcome set based on existing questionnaires embedded in the Childhood Cancer Survivor Study, British Childhood Cancer Survivor Study, and Dutch LATER study. We added specific outcomes reported by survivors in the Dutch LATER questionnaire. Second, we selected a list of clinical r

SUBMITTER: Streefkerk N 

PROVIDER: S-EPMC7473963 | biostudies-literature | 2020 Oct

REPOSITORIES: biostudies-literature