Perspectives regarding family disclosure of genetic research results in three racial and ethnic minority populations.

ABSTRACT: The lack of data on perspectives of racial and ethnic minority populations regarding family disclosure of individual research results (IRR) hinders the development of return of IRR policies and practices that are meaningful and culturally appropriate in diverse populations. This research aims to uncover preferences regarding family disclosure of IRR and identify factors that may shape the preferences in three minority populations. Nine focus groups with 68 adult African American, Hispanic/Latinx, and American Indian/Alaska Native individuals were conducted. Data were analyzed using thematic analysis. Participants were willing to share IRR with relatives who elected to know and preferred a participant-driven (vs. researcher-driven) decision-making process. Privacy of personal information wa

SUBMITTER: Zhu X 

PROVIDER: S-EPMC7475158 | biostudies-literature | 2020 Oct

REPOSITORIES: biostudies-literature