Health and kinship matter: Learning about direct-to-consumer genetic testing user experiences via online discussions.

ABSTRACT:

Background

Millions of people have undergone direct-to-consumer genetic testing (DTC-GT), but little is known about individuals' motivations and experiences (e.g., discussion topics and emotions after obtaining the test results) in engaging with DTC-GT services. Previous studies either involved only a small number of DTC-GT consumers or were based on hypothetical scenarios.

Objective

Our study aimed to fill this gap by investigating online discussions about DTC-GT that developed naturally among tens of thousands of social media users.

Methods

We focused on the posts that were published in the r/23andme and r/AncestryDNA subreddits, which correspond to the two companies with the largest number of consumers in the DTC-GT market. We applied computational methods to infer

SUBMITTER: Yin Z 

PROVIDER: S-EPMC7478842 | biostudies-literature | 2020

REPOSITORIES: biostudies-literature