Parents' multi-layered expectations when requesting an Autism Spectrum Disorder assessment of their young child: an in-depth interview study.

ABSTRACT:

Background

Parents are valued stakeholders in research, clinical practice and policy development concerning autism spectrum disorder (ASD). However, little is known about what drives and moves parents besides their obvious worries and help request when they ask for a diagnostic ASD assessment of their child.

Methods

Seventeen Flemish parents of 11 young children participated in a longitudinal study consisting of three in-depth interviews before and after their child's diagnostic ASD assessment. Data were analysed in Nvivo 11 according to the procedures of Interpretative Phenomenological Analysis.

Results

In this paper we report the results of the first series of interviews which were conducted after parents had asked for an ASD assessment of their young child, and bef

SUBMITTER: Jacobs D 

PROVIDER: S-EPMC7488345 | biostudies-literature | 2020 Sep

REPOSITORIES: biostudies-literature